The second time I got really, really sick. THANK YOU! Are there any national restaurants where you do feel safe? Perhaps you should contact corporate about the location you visited. I did not bring my own lunch b/c this cafe needs the business and thought it would be rude. I remember having my first, and last, Red Bridge beer. Someone with a service to sell to restaurants? You would have to take the train to White Plains and then take a cab from the train station (there are usually always cabs just waiting there). Really nice people and the restaurants they pick are usually very good. I ‘ve eaten at several different locations here in Portland and each time left knowing something wasn’t right. I'm at work right now crying while reading your site. The hives were extremely itchy, lumpy and painful and lasted for several days. I was not symptomatic when I was diagnosed so I really would have no idea if I was being glutened there or not. Thank you Dude!!!! It even has raspberry dipping sauce and berries on the side. With a Farm to Wok food philosophy at its core, P.F. I had the same relationship with my family as you do yours, I stopped helping them because I am very ill with two other diseases. What a relief to find what you are doing here. Lately we have been going to The Counter, I tried the GF bun a few times, now I just get my burger on the salad. I hope you can get out of there. Gluten-free since Enterolab test, December 2, 2005. I do not believe its impossible for Celiacs safely eat out. BTW, since I last posted, I’ve been to the Red Robin chain numerous times. Dude…My Dad Almost Died from Celiac, but Won’t Stop Eating Gluten. It is the only ingredient in their menu that I normally don’t eat. You reflect such a realistic view on this disease......while no one else understands, you and the people who gather here, make me feel just a little bit less crazy! They have a GF hot bar! Chang’s logo plate so that the server is aware that the dish is Gluten Free. Anyway, I always have to ask my Celiac friends if they can tolerate a restaurant without getting sick so I know if it’s ok for me or not. I think you are quite right to never go there again either, having had very similar experiences. The last time I went back the hostess tried to sit me in the guys section again and I refused and with ton of open tables they said it would be a 10 minute wait which turned longer and I left. As a direct result of your educational sharing and awareness raising efforts, I am confident that the health of countless lives have already been drastically improved. If anyone comes to the Chicagoland area, a wonderful, safe place to eat is DaLuciano’s in River Grove, IL. Later another plate came out on a GF plate and that is when they realized the mistake. At least PF Chang’s discloses. My gut feeling is that so much of their food is just not that healthy…or just doesn’t agree with many of us for a variety of reasons. :>). Which is by all or most accountss is a fad diet craze that is necessary for some but not absolute for most. To this end I left my well positioned job in order to follow my dream of working in a environment that does not make me ill, from going to work instead I am in the midst of opening a Deadicated GF eatery. Fairly new to having celiac and I just reciently ate at PF Changs. I have a coeliac teen and your stuff is perfect for her, a balance of info and fun. Til now I’ve forced myself to keep my lips zipped not wanting to be the one who complicates things w/ saying even ‘gluten free’ safe menu isn’t enough for my system! I’m with you on this one Dude . I also suspect they don’t use good oil. Unreal about the Macayo’s seasoning. Free meals and extreme hunger CAN cloud your thought process…I’m resorting to never, ever eating out ever again…I’ve been contaminated by so many places. The dragon tea is quite nice to share. There have been times when I have been chatting with others and suddenly they are gone because they sent me a website and they’v been told not to. We recently went to a PF Changs for my birthday and I thought it was great. Honestly, I did not want to offend you in any way. And anyone with Celiac should not be going to restaurants that serve anything gluten or any carb that claims to be GF since the FDA allows up to 2.5% gluten in products labeled “certified gluten free.” I’m surprised someone who claims to know so much about Celiac as “gluten dude” doesn’t know these very important facts. As for the main course, I can't even remember what I ordered because it was that unimpressive. Sounds paranoid, I know, but it keeps me well. You are not alone in your search for ‘normalcy’ when dining out. Please find a support group and maybe a therapist. I eat at that location very regularly and since I’m asymptomatic I have continued to eat there based on how knowledgeable they have seemed. Thanks. I guess I assume something is going to get screwed up at some point. I’ve eaten at PF Changs in several cities: Chicago, Knoxville and Indianapolis. If I got sick then I would know never to eat it again. Also, the pear mojito is excellent, for those who drink. in Post Diagnosis, Recovery & Treatment of Celiac Disease, By Required fields are marked *. Chang's: Celiac Safe! It also means that I have to question ingredients when ordering off a g/f menu, and can’t believe some of the info I get sometimes! I wanted to share a few of the procedures that we have in place when preparing Gluten Free dishes. P.F. Anyway the dinner was free and I did not get sick, but it was SCARY. So to you PF Chang’s…you had me but you lost me. Or expect that a chain restaurant offers some kind of automatic safety. If you look at the website, http://glutenfree.pfchangs.com, it says to ask for the gluten free soy sauce. IrishHeart: I’m glad you posted a positive comment about PF Changs, and you’re right – some of the sites are better than others. It usually takes 2-4 days to get over the effects. You've got to be kidding me!!!!!!! But, EVERY time I eat out anywhere (that’s like three places) I always worry whether I will be sick. It was good, but 13 bucks a la carte was no bargain. It's easy to find....Harvard Square in Boston, Mass., right down the street from Harvard University. And I've never found the need to call ahead. On top of the waitress seeming like she knew nothing at all. The other place I love, and it is VERY high end, is this....Rialto. I only go to these places a couple of times per year because they cost so much more but they are special occasion places and a trained chef, as you obviously know, is well versed in gluten and CC. Symptoms don’t always mean that you ingested gluten. I have some gift cards for RC, so my husband said to contact the chef and see if he can assure me a GF non-contaminated meal. Also, please, please all you GF people, grab a bottle of soy sauce. Once I eliminated soy from my diet I don’t have any issue eating at PF Chang’s. lol. :). But, it took nearly 1 1/2 years for my antibodies to start going down and for my symptoms of extreme fatigue (among many others, but not GI) to go away. . negative endoscopy and colonoscopy-december 2007, "At the end of the day, the fact that we're still here is reason enough to celebrate.". Its the most unconditional love and support I've received in two years. I might even go back and ask them to do minimal salt next time, if possible. I have found that most of the chains just do not impress me but at least they know what gluten is. It cold very well in fact simply be a isolated occurrence(s). if the company policy regarding GF is enforced and many people eat there all over the country without a “gluten reaction”, how can you say the entire corporation is not doing the right thing. I love Asian food. But it was really spicy?!? Not sure how that works, but I have to avoid sushi because of this. There was next to nothing that was GF then. The lettuce wraps & Singapore noodles are a must! So perhaps it is time for there to be not only FDA ruling on gluten free in foods, but also rulings on some measure of how to monitor restaurants claiming gluten free AND medications. God heavens, you are amazing. boycott the place? All the other beers are gluten reduced beers. I do think the soy is part of it Heather. =) Last night was roasted endive with herbs and an amazing brown rice mixture (sorry, but with golden beets, etc.). And just to be clear, I never stated I was getting glutened at PF Changs…just that I felt like crap afterwards and that they did drop the ball a few times. Dude…Where the hell have you been all my life? This website has made a significant impact on me. (Since we live in the same area) :). Hope you feel better soon. Love her videos. Thanks for all your input on multiple articles Rosemary. Very glad to hear that others have eaten there (Chipotle) without a problem. Your latest post is why my son wants to be Gluten Dude when he grows up. I've never done carry-out there so I don't know how consistent they are about labeling. He wants me to come back and see his kitchen and let him cook for me. I was at Pei Wei one time and the food didn’t taste right (likely the potato starch on the chicken was actually flour). Like you, Gluten Dude, I was very hungry, did not have my GF food kit with me, and hunger clouded my judgement. They’ll keep making dishes gluten free that aren’t really gluten free because they can charge a premium and keep the masses believing they’re eating healthier while us with the real problem really will have NO where safe to go. For those that don’t, thank your lucky stars. NOPE. Are egg rolls dairy free? I remember ordering and giving my big celiac speech for the first time. The thing about PF Changs is if you go during rush time, its going to be a madhouse. I am very sensitive, one bite of bread – which I recently ingested by accident – and I was vomiting for hours and could NOT stand up! Help!! We no longer visit any PF Changs and that is so sad. I’d rather someone smash my thumb with a sledge hammer. Ate at PF Changs yesterday. I just discovered your blog and am enjoying it so far. Hearing the stories and the battles you all have had to face has made me an advocate and given me a desire to fight for you all. The UMD Celiac Center had them as a part of their expo last month so they are definitely marketing themselves as being safe for Celiacs. People with CD just have to be very diligent label readers and very discriminatory about what some restaurants advertise as being GF when it really isn’t. OMG. “WE, the celiac sufferers, have to raise the bar, and most importantly, take a stand when the standard is not being met.”. Sophie H. July 29, 2011 Happy Hour : fish tacos are surprisingly good! Thank you for always giving us information, sharing your experiences, and generally helping us all feel that we aren’t crazy!!! I used to just eat out at certain Mexican and Asian restaurants and not really think twice (as long as I didn’t order burritos or eggrolls, I thought I was fine). The listings and if anyone has questions, fire away before diagnosis of Celiac related illness he is sad... To heal in the car, I did not feel well at all support this. 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